2 random thoughts for today
1 – I got summoned for jury duty, and this time I’m going to get a permanent exemption. I hate to do it, for reasons I have to think about. Perhaps it’s simply that I hate the thought that my disability makes me unable to do even 2 weeks worth of full time work. I did get on a jury once, so I do know how hard it is for me from experience, not just from guessing. I have 2 difficulties – one is getting there by 8 AM and still getting enough sleep. And the other is related to the locations of the bathrooms. The courtroom I was in had some bathrooms nearby, but they weren’t wheelchair accessible. To get to the accessible ones you had to go down a hallway that was 2 blocks long (I kid you not, there was a bridge in it over a street) to an elevator and then find the way to the bathrooms in the lobby of the building. On break time I did not have even enough time to get to the bathroom and back, let alone use it! So, I limited my beverages and food intake so I wouldn’t have to go. Even using a catheter, you need bathrooms sometimes to empty a legbag. And an IBS flare up would have been horrible. So, they’ll grant me an excuse on medical grounds, but I don’t like it much. I like to think that I’m the kind of person everyone would want on a jury! And if everyone like me found a way out, who’s left?
2 – We had dinner in the Gaslamp District downtown today, and I was noticing how many beggars use wheelchairs. I didn’t count but it was a much higher percentage than you see in the general population. I would even say 25% of the beggars. That deserves its own discussion perhaps, another day. But it reminded of a time when I was 16 years old, in downtown Philadelphia, pushing myself 2 blocks from my dad’s office to a dental appointment. I hadn’t been using a chair very long then, so I was a novice and those old chairs were heavy, so it was slow going. I had a cupholder on my chair and I was carrying a newspaper tucked in next to my hip. A young adult black man – the image in my memory is rather tall, thin, adult but not old, perhaps as old as 30, way older than me – came up to me as I passed and reached his hand out right next to me. I thought he was going to take my newspaper! So, I swatted him away!! Then a group of men started laughing at him (and/or me), I assume they were his friends. Later it occurred to me that he was only reaching out to put money in my cup. There were people in wheelchairs begging for money in the 70s just as there are people begging now. I had never been part of a group that took handouts, and it had never occurred to me that anyone might see me that way. I guess a girl in a chair is a girl in a chair. Back then I had a lot of trouble knowing how to behave when around one of these street people – do I nod or say hello, or do I ignore and move on. Now, well, it depends on where I am. In Berkeley there are just so many street people that the only way to tolerate them is to ignore them one and all it seems. They are quite pushy there. But in San Diego (maybe because we have fewer that seem deranged), I find it doesn’t really hurt anyone to say hello, and acknowledge a small type of brotherhood, they might not get my dollar, but friendliness is good for us all. Besides, once in a while I find myself thinking, that “there but for the grace of God, go I”.
Tuesday, August 3, 2010
Monday, August 2, 2010
Back in the Saddle Again
I guess I’ve taken a 3 week vacation from writing. I didn’t intend to, and didn’t realize till today how long it’s been since I last wrote an entry. I’ve been struggling a lot with understanding why I’m writing, who I want to write for, what I want to say in general. And my writing has been bringing up old memories and feelings as well, that I’ve wanted to focus on. About the time I stopped writing I had realized that it would help me to go back into therapy again, but I wasn’t quite ready to bring that up to Jim, my husband – and so that was another issue to think about.
So, what I did do during these last few weeks was to write down a topic heading, say …. IF I had written that day…. What would my topic have been? And for my own note taking, to also jot down what else I did that day.
So – just to get me current – today I’m going to put out that list of all the topics that were missed! Perhaps at some point I’ll come back to them, probably will actually, but they won’t get their 1200 word treatment today.
1 – A book I’ve been reading – Rise Above by Ralph Braun. It was given to me by a sales guy at the place where my Chair Topper is serviced. I was waiting around, and looked like I needed something “inspirational” to read I guess. This kind of book drives me crazy. The title alone is annoying.
2 – 7/13 was the Anniversary of my going home from rehab – another milestone from 1973 –and the beginning of another phase of changes.
3 – parking issues – oh boy, lots of material here. But one day I parked in a non-handicapped spot because all the H spots were taken, and the store was one I REALLY wanted to go to. The non-H spots were fairly large so I could get out ok, and I took that chance I’d get parked in. Been a LONG time since I did this when out alone.
4 – HOT HOT HOT – I can’t handle the heat at all anymore. AC running non stop
5 – My physical therapist gave her stamp of approval for my new chair. I’m very glad. I do sit up straighter, not perfect, but better.
6 – Wrote a letter to Tilite (the chair manufacturer) complaining about the arms – too heavy, hard to put on and off. Also sent a positive testimonial and photos since they were nice enough to swap out the higher arms for lower ones for free.
7 – another parking day – spent time previewing the area around an event I’ll attend in August, mostly puzzling out parking issues. I know there are people who pre drive a route and check parking when are going someplace new, but I’m not usually one of them!
8 – Got alterations done of several shirts – GREAT IDEA! I think this will change how I shop for clothes. If I like a shirt basically, and the only problem is something like irritating ¾ sleeves – buy it and get it fixed!
9 – My relationship with my Mom has changed a lot over the years, lots to talk about there. Now I’m actually getting along with her the best I ever have.
10 – Blogging, writing, takes a lot of time. After a week it’s clear I have more time, but I miss the writing.
11 – While I get dressed – Jim can feed the cats, make coffee, take a shower and get dressed. If I take a shower before getting dressed, he can also eat breakfast, read the paper and give cats treats. I hate being anywhere before 10:30, because it takes me 2 hours to do my morning routine. I can’t imagine trying to be at work by 9.
12 – Comic-Con – I was too late to get tickets, and I really wanted to go. I found someone who would go with me, to push me about because I know the facility is too big, but I was late getting tickets. Then I found out that whoever is pushing me can get in free! I’m going to go next year.
13 – Allergies! Not disability related, but so annoying! We had a few days of hot weather, and the cats were shedding. I think that’s what messed me up.
14 – Terrible seats in a movie theater, so annoying to be in the back row on the side. I can live with it, but I hate my friends having to give up better seats.
15 – One of my son Stephen’s friends is biking cross – country, like Stephen did 3 years ago. This time I find it more fun to read the blog about it. What an adventure! And when it’s not my kid, I worry less. This is something I will never be able to do, unless it’s by car.
16 – A friend and I are having dinner together in August, my turn to pick a restaurant. We both use wheelchairs. Once again I’m picking someplace partly because of parking. I hate picking some one place over another because of parking! With restaurants there are so many places to choose from it isn’t that big a deal, but I might end up picking a therapist based on parking too. That is more than annoying.
17 – More sleep trouble – cats.
18 – I am a super organized person, always have been, even pre injury. Now though, it does make me feel like I’m more useful that I can help a friend of mine who is moving with my organizational skills, even though I can’t pack and carry boxes for her.
19 – a biggie – wheelchair update. I decided to switch the tires for my 2 sets of wheels. I like the orange spoke wheels with the smooth push rims best – so thought I’d put the pneumatic tires on them, and move the solid tires to the yellow spoke wheels. Things did not go smoothly, and the repair guy punctured one inner tube – so I’m on the solids till new inner tubes are ordered.
20 – running low on gas, had to pump my own (with help from another customer because the push pad was so high up)
21 – I have a 2004 Toyota Avalon, caught in the latest recall for possible breaking in the steering column. I called immediately for an appointment, to be called back and told they didn’t have the parts yet! So, for now, I’m driving around a “risky” vehicle. Not super worried.
22 – I am listening to a book on tape about a high school shooting – why do I end up picking this kind of book? This time I would say I didn’t realize it was about a shooting, I picked the book up because it was the only book on tape by that author, and honestly it’s a good story! But did I read a summary at all before checking the library book out? There must be some reason I gravitate to stories like this, or do I?
23 – really busted tires. I’ve been sitting on the solids for 4 days, and they have a squeak every time I go over a certain spot on the tire. So, I did some research. The tech broke a cable inside the solid tires. They are busted, have to be replaced. I’m not in danger riding on them, but effectively my attempt to swap pneumatic tires and solids has caused me to have busted both sets. Ordered another set of solids, a tool to put them on, new inner tubes and new rim liners to keep spokes from poking the tubes. $103. Meanwhile until supplies come in, I’m sitting on squeaky tires on the yellow rim wheels I don’t like. Sigh.
24 – Somehow I messed up my 3rd toe on my left foot. I have a big scab at the tip of the toe, half under my nail. Where did I bump it? What did I go?
Last but not least, and this does deserve a full paragraph at least, is the topic of therapy. Today I met with the therapist I saw for about 10 years, between 1980 and 1990 approximately. As I was thinking about the idea of therapy, it occurred to me that seeing Melody would be a good first step. My insurance plan is decent. It covers all but $20 a session, with no maximum number of sessions a year. I thought I might see her again, find out what her rates are, and ask her to review the list of therapists who are covered in-network for my insurance. I wasn’t even sure she was doing the kind of therapy I’d be interested in. The last I knew (20 years ago) she was switching to more psychoanalysis. When I found her listed in the yellow pages, I was at the same time both pleased she was still in practice and at the same location, and somehow sad that her life hadn’t taken her on some new journey. Perhaps when you are happy with what you do, then there’s no need to move, huh? For my own sake, I’m glad she is still here – both alive in this world, and in San Diego, and in practice. She said I looked just the same, which I think was just being nice. She looks good, a bit thinner, but healthy, just older. She sounds exactly the same. It felt a bit like going back to see “Mom”, a bit like seeing an old friend to catch up on what was new, and a bit like therapy all in 45 minutes.
But, I still will have to decide whether to see her, or pick someone new. Melody knows me, remembers a lot about me, and there’s some value in that history, though it’s hard to put a dollar value on that. She doesn’t take insurance though, so tomorrow I’ll find out what my insurance pays for out-of-network doctors. Or maybe I’d be better off finding someone new, who doesn’t know me, sort of a clean slate thing, especially if I find someone with more experience with people with disabilities. Does this matter? Tomorrow I do my research, and then I’ll have to decide. Jim’s ok with all of this, though my sense is that it worries him a little. And I admit I hate the idea of a year of therapy costing as much as a good vacation would for both of us.
Right now, my reason for therapy also feels like fluff, an extra – not because of some psychological turmoil, but rather just because I want to understand something. I want to know where this writing is taking me, what it is that is driving me to write, and who I am writing for. And I want a safe place to talk about the emotions that some of my topics bring up. The therapy, the writing, are luxuries I have because I live a rather easy life. I’m not worried about where my next meal is coming from, or how I’m going to pay the rent. I’m not doing this for some eventual money. If I didn’t write I doubt the world would notice or care. And so I feel more guilty about using money selfishly just on myself, when both Jim and I could enjoy it. All the same, something is feeling right about my desire to write about my disability now.
And that’s where I am today.
So, what I did do during these last few weeks was to write down a topic heading, say …. IF I had written that day…. What would my topic have been? And for my own note taking, to also jot down what else I did that day.
So – just to get me current – today I’m going to put out that list of all the topics that were missed! Perhaps at some point I’ll come back to them, probably will actually, but they won’t get their 1200 word treatment today.
1 – A book I’ve been reading – Rise Above by Ralph Braun. It was given to me by a sales guy at the place where my Chair Topper is serviced. I was waiting around, and looked like I needed something “inspirational” to read I guess. This kind of book drives me crazy. The title alone is annoying.
2 – 7/13 was the Anniversary of my going home from rehab – another milestone from 1973 –and the beginning of another phase of changes.
3 – parking issues – oh boy, lots of material here. But one day I parked in a non-handicapped spot because all the H spots were taken, and the store was one I REALLY wanted to go to. The non-H spots were fairly large so I could get out ok, and I took that chance I’d get parked in. Been a LONG time since I did this when out alone.
4 – HOT HOT HOT – I can’t handle the heat at all anymore. AC running non stop
5 – My physical therapist gave her stamp of approval for my new chair. I’m very glad. I do sit up straighter, not perfect, but better.
6 – Wrote a letter to Tilite (the chair manufacturer) complaining about the arms – too heavy, hard to put on and off. Also sent a positive testimonial and photos since they were nice enough to swap out the higher arms for lower ones for free.
7 – another parking day – spent time previewing the area around an event I’ll attend in August, mostly puzzling out parking issues. I know there are people who pre drive a route and check parking when are going someplace new, but I’m not usually one of them!
8 – Got alterations done of several shirts – GREAT IDEA! I think this will change how I shop for clothes. If I like a shirt basically, and the only problem is something like irritating ¾ sleeves – buy it and get it fixed!
9 – My relationship with my Mom has changed a lot over the years, lots to talk about there. Now I’m actually getting along with her the best I ever have.
10 – Blogging, writing, takes a lot of time. After a week it’s clear I have more time, but I miss the writing.
11 – While I get dressed – Jim can feed the cats, make coffee, take a shower and get dressed. If I take a shower before getting dressed, he can also eat breakfast, read the paper and give cats treats. I hate being anywhere before 10:30, because it takes me 2 hours to do my morning routine. I can’t imagine trying to be at work by 9.
12 – Comic-Con – I was too late to get tickets, and I really wanted to go. I found someone who would go with me, to push me about because I know the facility is too big, but I was late getting tickets. Then I found out that whoever is pushing me can get in free! I’m going to go next year.
13 – Allergies! Not disability related, but so annoying! We had a few days of hot weather, and the cats were shedding. I think that’s what messed me up.
14 – Terrible seats in a movie theater, so annoying to be in the back row on the side. I can live with it, but I hate my friends having to give up better seats.
15 – One of my son Stephen’s friends is biking cross – country, like Stephen did 3 years ago. This time I find it more fun to read the blog about it. What an adventure! And when it’s not my kid, I worry less. This is something I will never be able to do, unless it’s by car.
16 – A friend and I are having dinner together in August, my turn to pick a restaurant. We both use wheelchairs. Once again I’m picking someplace partly because of parking. I hate picking some one place over another because of parking! With restaurants there are so many places to choose from it isn’t that big a deal, but I might end up picking a therapist based on parking too. That is more than annoying.
17 – More sleep trouble – cats.
18 – I am a super organized person, always have been, even pre injury. Now though, it does make me feel like I’m more useful that I can help a friend of mine who is moving with my organizational skills, even though I can’t pack and carry boxes for her.
19 – a biggie – wheelchair update. I decided to switch the tires for my 2 sets of wheels. I like the orange spoke wheels with the smooth push rims best – so thought I’d put the pneumatic tires on them, and move the solid tires to the yellow spoke wheels. Things did not go smoothly, and the repair guy punctured one inner tube – so I’m on the solids till new inner tubes are ordered.
20 – running low on gas, had to pump my own (with help from another customer because the push pad was so high up)
21 – I have a 2004 Toyota Avalon, caught in the latest recall for possible breaking in the steering column. I called immediately for an appointment, to be called back and told they didn’t have the parts yet! So, for now, I’m driving around a “risky” vehicle. Not super worried.
22 – I am listening to a book on tape about a high school shooting – why do I end up picking this kind of book? This time I would say I didn’t realize it was about a shooting, I picked the book up because it was the only book on tape by that author, and honestly it’s a good story! But did I read a summary at all before checking the library book out? There must be some reason I gravitate to stories like this, or do I?
23 – really busted tires. I’ve been sitting on the solids for 4 days, and they have a squeak every time I go over a certain spot on the tire. So, I did some research. The tech broke a cable inside the solid tires. They are busted, have to be replaced. I’m not in danger riding on them, but effectively my attempt to swap pneumatic tires and solids has caused me to have busted both sets. Ordered another set of solids, a tool to put them on, new inner tubes and new rim liners to keep spokes from poking the tubes. $103. Meanwhile until supplies come in, I’m sitting on squeaky tires on the yellow rim wheels I don’t like. Sigh.
24 – Somehow I messed up my 3rd toe on my left foot. I have a big scab at the tip of the toe, half under my nail. Where did I bump it? What did I go?
Last but not least, and this does deserve a full paragraph at least, is the topic of therapy. Today I met with the therapist I saw for about 10 years, between 1980 and 1990 approximately. As I was thinking about the idea of therapy, it occurred to me that seeing Melody would be a good first step. My insurance plan is decent. It covers all but $20 a session, with no maximum number of sessions a year. I thought I might see her again, find out what her rates are, and ask her to review the list of therapists who are covered in-network for my insurance. I wasn’t even sure she was doing the kind of therapy I’d be interested in. The last I knew (20 years ago) she was switching to more psychoanalysis. When I found her listed in the yellow pages, I was at the same time both pleased she was still in practice and at the same location, and somehow sad that her life hadn’t taken her on some new journey. Perhaps when you are happy with what you do, then there’s no need to move, huh? For my own sake, I’m glad she is still here – both alive in this world, and in San Diego, and in practice. She said I looked just the same, which I think was just being nice. She looks good, a bit thinner, but healthy, just older. She sounds exactly the same. It felt a bit like going back to see “Mom”, a bit like seeing an old friend to catch up on what was new, and a bit like therapy all in 45 minutes.
But, I still will have to decide whether to see her, or pick someone new. Melody knows me, remembers a lot about me, and there’s some value in that history, though it’s hard to put a dollar value on that. She doesn’t take insurance though, so tomorrow I’ll find out what my insurance pays for out-of-network doctors. Or maybe I’d be better off finding someone new, who doesn’t know me, sort of a clean slate thing, especially if I find someone with more experience with people with disabilities. Does this matter? Tomorrow I do my research, and then I’ll have to decide. Jim’s ok with all of this, though my sense is that it worries him a little. And I admit I hate the idea of a year of therapy costing as much as a good vacation would for both of us.
Right now, my reason for therapy also feels like fluff, an extra – not because of some psychological turmoil, but rather just because I want to understand something. I want to know where this writing is taking me, what it is that is driving me to write, and who I am writing for. And I want a safe place to talk about the emotions that some of my topics bring up. The therapy, the writing, are luxuries I have because I live a rather easy life. I’m not worried about where my next meal is coming from, or how I’m going to pay the rent. I’m not doing this for some eventual money. If I didn’t write I doubt the world would notice or care. And so I feel more guilty about using money selfishly just on myself, when both Jim and I could enjoy it. All the same, something is feeling right about my desire to write about my disability now.
And that’s where I am today.
Friday, July 9, 2010
A bit of Filler?
I don’t really know what to say. I feel like I need to write something, because I know a few people check on my blog on a regular basis. Lately I have simply been so busy, that I can’t seem to carve out the time to write, or when I have a little quiet time I want to just kick back, relax and read. I’ve been reading some good books and blogs lately, perhaps I’ll write about that one day. And my social life has been busier than usual as well. It’s all good, and I’m fine – well mostly fine. Did have that flu a week ago. But generally speaking I’m doing ok.
I suppose I’m taking a break from writing without intending to. Hopefully in the next couple of weeks I’ll get my frame of mind back for writing, and I’ll open up a few hours a day for writing too. I want to! I even think that my not writing makes me grumpy.
So, thank you to anyone who likes my writing and for checking on me. Keep checking back, because I’ll be back – just not sure when exactly at the moment. Tomorrow is Jim’s and my 6th Anniversary, and we’re headed out of town for a night alone (no cats). Sunday is the World Cup. Next week is a busy one. Jim is “out of town” in San Diego meaning at a conference long hours, but coming home to go to bed. This is actually harder on both of us. Instead of just crashing in a hotel room just 5 minutes away from his meetings, he has a commute. And though my schedule is a bit more my own as if he is away, I’ll still be up when he gets up and will find it hard to work late into the night if I want. At least I don’t have to cook dinner! Oh, except for Wednesday when he invited a business friend over for dinner. So, another busy week in other words. Again, it’s all good.
A last note about my new wheelchair – I got the shorter armrests today, so my chair is totally set up as I like it, and my body is adjusting. My fingers aren’t pink and shiny anymore. My transfers are getting smoother, and my new straighter posture isn’t giving me a neck-ache. The second set of wheels is ordered but may take a while to arrive. So, I’m inclined to call it a success and am ready to move on – to buying a new cushion.
I suppose I’m taking a break from writing without intending to. Hopefully in the next couple of weeks I’ll get my frame of mind back for writing, and I’ll open up a few hours a day for writing too. I want to! I even think that my not writing makes me grumpy.
So, thank you to anyone who likes my writing and for checking on me. Keep checking back, because I’ll be back – just not sure when exactly at the moment. Tomorrow is Jim’s and my 6th Anniversary, and we’re headed out of town for a night alone (no cats). Sunday is the World Cup. Next week is a busy one. Jim is “out of town” in San Diego meaning at a conference long hours, but coming home to go to bed. This is actually harder on both of us. Instead of just crashing in a hotel room just 5 minutes away from his meetings, he has a commute. And though my schedule is a bit more my own as if he is away, I’ll still be up when he gets up and will find it hard to work late into the night if I want. At least I don’t have to cook dinner! Oh, except for Wednesday when he invited a business friend over for dinner. So, another busy week in other words. Again, it’s all good.
A last note about my new wheelchair – I got the shorter armrests today, so my chair is totally set up as I like it, and my body is adjusting. My fingers aren’t pink and shiny anymore. My transfers are getting smoother, and my new straighter posture isn’t giving me a neck-ache. The second set of wheels is ordered but may take a while to arrive. So, I’m inclined to call it a success and am ready to move on – to buying a new cushion.
Subscribe to:
Posts (Atom)